Act on Lyme Disease "Access to Treatment" Bill

Act on Lyme Disease "Access to Treatment" Bill

Pennsylvania is #1 in the nation in Lyme disease cases, with over 12,000 new cases reported in 2016.  40-50% of cases do NOT respond to short-term treatment.  Medical Treatment Guidelines represent multiple schools of thought, including the need for longer term treatment in persistent cases.  Without proper diagnosis and access to treatment, persistent Lyme disease can devastate and rob lives. Enough is enough - insurers need to pay for standard treatments prescribed by the physician.  Insurers cannot cherry pick the evidence based guidelines they think a patient should be treated by.  The physician is the one licensed to make that ...

Pennsylvania is #1 in the nation in Lyme disease cases, with over 12,000 new cases reported in 2016.  40-50% of cases do NOT respond to short-term treatment.  Medical Treatment Guidelines represent multiple schools of thought, including the need for longer term treatment in persistent cases.  Without proper diagnosis and access to treatment, persistent Lyme disease can devastate and rob lives. Enough is enough - insurers need to pay for standard treatments prescribed by the physician.  Insurers cannot cherry pick the evidence based guidelines they think a patient should be treated by.  The physician is the one licensed to make that determination for the patient.  CDC studies have demonstrated that most physicians ARE treating longer than the shorter-term recommendations insurers cover today.  So - long-term treatment IS the standard of care, and yet insurers are denying coverage calling such treatment "experimental".  

This campaign will guide you to take 3 specific ACTIONS over the next month to advocate for action on Senate Bill 100 and House Bill 174:   

1) Email/Letter Campaign - ASAP

2) Phone Call-in Campaign - ASAP and on May 9th 

3) Rally Day & In-Person Meetings with Legislators in Harrisburg on May 9th, 2017

On May 9th we need to SHOW UP IN NUMBERS THAT REPRESENT THE HUGE NUMBER OF LYME DISEASE CASES IN PA EACH YEAR!   Get your GREEN out and WEAR it - we need you, your friends, family and all advocates there!

PA Lyme Resource Network, through LymeActionPA - www.lymeactionpa.org 

 

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Email your PA Senator About SB100

LymeActionPA (a state-wide coalition formed by PA Lyme Resource Network) is reaching out to all Pennsylvania residents and Lyme patients to join together to get Senate Bill 100, The Lyme Disease and Related Tick-Borne Disease Diagnosis and Treatment Act, passed. 

We are asking that you TAKE ACTION and email your Senator!  This first Call for Action will help you email your Senator to ask them to help get SB100 (The ...

LymeActionPA (a state-wide coalition formed by PA Lyme Resource Network) is reaching out to all Pennsylvania residents and Lyme patients to join together to get Senate Bill 100, The Lyme Disease and Related Tick-Borne Disease Diagnosis and Treatment Act, passed. 

We are asking that you TAKE ACTION and email your Senator!  This first Call for Action will help you email your Senator to ask them to help get SB100 (The Lyme and Related Tick-Borne Disease Diagnosis and Treatment Act), out of the Senate Banking & Insurance Committee and onto the Senate floor for action.

CRITICAL:  Personalize the letter where we instruct you to - tell them this bill is important to you, briefly share your Lyme story and how the costs of Lyme treatment have affected you or your family, friends, and how insurance coverage is critical to access treatments, and how access to such treatments impacted you.

NOTE:  some people have sent letters in WITHOUT replacing our NOTE with your personal story.  Your personalization of the letter is critical.  

If you are doing this through DoGooder, the system will add your legislator's name once you fill in your address and "Find Your Local Rep." It will also add your name at the bottom of the letter after you have filled it in the form.

 

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Compose your email

Email Tips +

Keep your story brief - focus on the topic of the bill:  ensuring that insurers pay for/cover longer-term antibiotic treatment, and do not deny these as being "unproven or experimental". 

Share facts - like the # of weeks of treatment you originally got, whether it worked or not, how long the delay in treatment was and it's impact on you, cost of out of pocket treatments not covered by insurance, and the outcomes you achieved by being able to access (pay for) longer term treatment. 

Don't distract - with other important issues.  There are so many issues in Lyme disease - but we need your story to stay on topic. 

Personalize the letter above - the more it is "yours" the more likely your representative will read it, and respond.  Research shows that "form letters" are not nearly as effective  WITHOUT the personalization - so make it yours.