2019 PA Access to Lyme/Tickborne Disease Treatment Bill HB629

2019 PA Access to Lyme/Tickborne Disease Treatment Bill HB629

image of 2019 PA Access to Lyme/Tickborne Disease Treatment Bill HB629

Lyme Access to Treatment Bill Voting week of April 8th, that’s THIS WEEK! We Need Your Voice NOW!  Please make calls and send emails between now and Tuesday, April 9th.

You got it through the first hurdle – passing it out of the Health Committee. Now it’s onto the House floor where all Representatives will vote on it.  This bill will get treatment covered by insurance!  READ HB 629 HERE.  NOTE:  negotiations on bill are underway – final bill will be posted on Facebook.

Thank you to the OVER 400 of you who already sent letters! And the 23 phone ...

Lyme Access to Treatment Bill Voting week of April 8th, that’s THIS WEEK! We Need Your Voice NOW!  Please make calls and send emails between now and Tuesday, April 9th.

You got it through the first hurdle – passing it out of the Health Committee. Now it’s onto the House floor where all Representatives will vote on it.  This bill will get treatment covered by insurance!  READ HB 629 HERE.  NOTE:  negotiations on bill are underway – final bill will be posted on Facebook.

Thank you to the OVER 400 of you who already sent letters! And the 23 phone calls!

ACTION NEEDED:  CALL your Representatives Today, Saturday, 4/6 through Tuesday 4/9.  Send an email too if you haven’t already.

FINAL VOTE on the bill is Wed. 4/10/19

1.  Call Your Representative to vote YES for HB 629 - see actions/phone script provided

 2. Email Your Representative to vote YES for HB 629 – see actions/email template - make sure you PERSONALIZE the template letter!

NOTE:  your legislators will appear automatically in this program. You should also know that you can find your PA legislators by texting 520-200-2223 with your ZIP CODE to get a text with your legislators.

TAKE ACTION NOW!

If you have questions, email [email protected], VP/Director of Legislative Affairs, www.palyme.org.  Thank you for your PROMPT action!

Find a list of ALL PA Representatives HERE.

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Email Your Rep About HB 629

PA Lyme’s LymeActionPA (a state-wide advocacy coalition) is reaching out to all Pennsylvania residents and Lyme patients to join together to get HB 629 passed (The Lyme Disease and Related Tick-Borne Disease Diagnosis and Treatment Act).

This CALL FOR ACTION makes it easy for you to EMAIL your Representative to urge them to help get HB629 voted/passed out of the House. These emails/letters must be sent by ...

PA Lyme’s LymeActionPA (a state-wide advocacy coalition) is reaching out to all Pennsylvania residents and Lyme patients to join together to get HB 629 passed (The Lyme Disease and Related Tick-Borne Disease Diagnosis and Treatment Act).

This CALL FOR ACTION makes it easy for you to EMAIL your Representative to urge them to help get HB629 voted/passed out of the House. These emails/letters must be sent by Tuesday, 4/9/19!

CRITICAL:  Tell your story briefly where we instruct you to – why this bill is important to you, how the costs of Lyme diagnosis and treatment have affected you or your family, friends, and how insurance coverage is critical to access treatments and if treated, how being able to access treatment has made a difference for you.

NOTE:  some people have sent letters in WITHOUT replacing the sample text with your personal stories.  Make sure you replace the sample text with your personal text.

The system will automatically add your legislator's name once you fill in your address and "Find Your Local Rep" below. This Do Gooder system will also add your name at the bottom of the letter after you have filled it in the form.

If you put your address in and get an error message after filling in your address that says, "No representatives in your district have email/contact-form details listed" go to FIND YOUR REP and type in the name of your legislator for their email and other contact information. 

If your rep's email doesn't come up in this system, you will have to send an emal via your own email.

1. Copy the "EMAIL TEXT" below

2. Paste that text in to your own email message and make sure to sign it (since you aren't using the DO GOODER system it won't do this for you now)

3. MOST IMPORTANT - PLEASE CC in the email the following:

Jackie Zulli, VP, Legislative Affairs, PA Lyme - [email protected]

Julia Wagner, President, PA Lyme – [email protected]

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Compose your email

Email Tips +

Keep your story brief

Focus on the topic of the bill:  insurers must pay for longer-term treatment.
Share facts - the # of weeks of treatment you originally got, how long the delay in treatment was, cost of out of pocket treatments not covered by insurance, and the outcomes you achieved by being able to access (pay for) longer term treatment.

Don't distract with other important issues.  There are so many issues in Lyme disease - but we need your story to stay on topic.

Personalize the letter above - the more it is "yours" the more likely your representative will read it, and respond.  Research shows that "form letters" are not nearly as effective WITHOUT the personalization - so make it yours